Well I’m up doing my normal Monday hustle, along with changing the bedsheets, turning the mattress (which you should do every season), doing the laundry, along calling to get my wife’s prescriptions ready. It’s what a caregiver calls a normal day. With my wife’s leg and side giving her a fit, she’s slowed down even more. Spending most of the day in her recliner with a heating pad. For over two years we have been going to specialist after specialist never getting a straight answer. Just more test and more prescriptions. Some have told me in private that she must be exaggerating the pain, because they can find nothing wrong. But these are not the answers you give to a disabled person who said it hurts and that none of us (including me) cares.
So what do you do? You take care of business. So I get on the phone with the pain management doctor that’s 150 miles away and beg someone to answer the phone. Then when they do all I get are procedure appointments rescheduled and rescheduled months down the road. Her next appointment is the day after Christmas. With no medication prescriptions renewed or anything. Nice huh? So I ask myself, where do we go from here? I mean this as far as we have gotten to any solution so far. Do we start all over again, I mean, seriously? But mine is just one story in what I’m sure are millions of other stories.
Stepping back from your own selfish frustration you have to consider the millions of other advocates and caregivers out there. Those with even less resources then even you have. Those working fulltime jobs or those who depend on medical transport or those crying in there pillows at night when no one’s there. Plus those that have to deal with family members who don’t life a finger to help. Yet hang like vultures waiting to pick their loved ones bones. These are hard words to hear, let alone write down. But they must be written. So to all the caregivers out there, I get it. Maybe someday a commonsense solution will be found. Till then…continue the hustle.
So what do you do? You take care of business. So I get on the phone with the pain management doctor that’s 150 miles away and beg someone to answer the phone. Then when they do all I get are procedure appointments rescheduled and rescheduled months down the road. Her next appointment is the day after Christmas. With no medication prescriptions renewed or anything. Nice huh? So I ask myself, where do we go from here? I mean this as far as we have gotten to any solution so far. Do we start all over again, I mean, seriously? But mine is just one story in what I’m sure are millions of other stories.
Stepping back from your own selfish frustration you have to consider the millions of other advocates and caregivers out there. Those with even less resources then even you have. Those working fulltime jobs or those who depend on medical transport or those crying in there pillows at night when no one’s there. Plus those that have to deal with family members who don’t life a finger to help. Yet hang like vultures waiting to pick their loved ones bones. These are hard words to hear, let alone write down. But they must be written. So to all the caregivers out there, I get it. Maybe someday a commonsense solution will be found. Till then…continue the hustle.
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